Renowned singer Celine Dion has revealed her decade-long struggle with a rare neurological disorder, stiff person syndrome (SPS), in an exclusive interview with Vogue. Dion recounted her journey of puzzling symptoms and misdiagnoses that eventually led to the discovery of her condition.
In 2008, during her Taking Chances World Tour, Dion noticed the first signs of trouble with her voice. Despite thorough examinations by medical professionals, no abnormalities were found in her vocal cords. Determined to press on, Dion continued with her demanding schedule, which included Las Vegas residencies and multiple tours. However, over time, she experienced worsening symptoms, including muscle stiffness and difficulty walking.
It wasn’t until the onset of the COVID-19 pandemic in 2020 that Dion found herself with the opportunity to pursue answers to her health concerns. Following extensive testing, she received the diagnosis of stiff person syndrome, a disorder characterized by muscle stiffness and spasms for which there is no cure.
Despite the challenges posed by her condition, Dion maintains a positive outlook, expressing gratitude for finally having a diagnosis after years of uncertainty. She has since embarked on a rigorous treatment regimen, consisting of physical, vocal, and athletic therapy five days a week.
In her upcoming documentary, “I Am: Celine Dion,” slated to stream on Prime Video starting June 25, Dion offers viewers an intimate glimpse into her life with SPS. It marks the first time she has allowed outsiders into her home, providing a raw and candid portrayal of her struggles and triumphs.
Dion hopes that the documentary will raise awareness about stiff person syndrome and encourage others to seek help if they suspect they may have a similar condition. Through her openness and resilience, Dion aims to inspire others facing health challenges to persevere and seek the support they need.
As she aptly puts it, “Life doesn’t give you any answers. You just have to live it!” With her unwavering determination and commitment to living her best life despite SPS, Dion continues to be an inspiration to millions around the world.
